Sturge Weber Syndrome: Sturge-Weber Syndrome (encephelotrigeminal angiomatosis) is a congenital, non-familial disorder of unknown incidence and cause. It is characterized by a congenital facial birthmark and neurological abnormalities. Other symptoms associated with Sturge-Weber can include eye and internal organ irregularities. Each case of Sturge-Weber Syndrome is unique and exhibits the characterizing findings to varying degrees.
Sturge-Weber Foundation[1]
Links for this Special Need:
http://www.sturge-weber.org/medical-matters/sturge-weber-syndrome.html
http://www.cincinnatichildrens.org/health/s/sturge-weber-syndrome/
Stories or Blogs from Families who have Parented a Child with Sturge Weber Syndrome:
http://www.nohandsbutours.com/category/sturge-weber-syndrome/
http://kaijinsbigsis.blogspot.com/
http://fireworksandfireflies.blogspot.com/
[1] http://www.sturge-weber.org/
